Day: May 15, 2019

Cleft Lip & Palate Association of Ireland (CLAPAI):

https://www.cleft.ie/ CLAPAI seeks to provide support through talking to new parents and providing advice on feeding, and ongoing medical care throughout the treatment. Most of the people active on the CLAPAI committee are parents themselves, and thus are in a position to give a valuable perspective, practical advice and support.

Angelman Syndrome Ireland:

https://www.angelman.ie/ What is Angelman Syndrome? Angelman Syndrome is a genetic disorder of chromosome 15  characterised by severe intellectual disability, lack of speech, sleep disturbance, and yet, usually a happy demeanour. Affecting 1 in every 20,000-25,000 people and based on our population there are currently approximately 350 people living with AS

HSE: Useful Links

https://www.hse.ie/eng/services/list/4/disability/progressing-disability/links/ Please note websites which are not Irish may contain information on services which may not be relevant in this country ASD / Autism:https://hse.ie/portal/eng/health/az/A/Autistic-spectrum-disorder/www.aspireireland.iewww.autismireland.iewww.autismspectrum.org.auwww.autism.org.ukwww.middletownautism.comwww.asiam.ieADD/ADHD:https://hse.ie/portal/eng/health/az/A/Attention-deficit-hyperactivity-disorder-ADHD-/www.hadd.iewww.incadds.ieAngelman Syndrome:www.angelman.iehttps://ghr.nlm.nih.gov/condition/angelman-syndromeBrain Injury:www.abiireland.iewww.headway.ieCerebral Palsy:https://www.scope.org.uk/Chromosomal:www.rarechromo.orghttps://www.grdo.ie/Cleft Palate:https://www.cleft.ie/https://www.hse.ie/eng/health/az/C/Cleft-lip-and-palate/Down’s Syndrome:https://hse.ie/portal/eng/health/az/D/Down’s-syndrome/https://www.downsyndrome.ie/DCD / Dyspraxia:https://hse.ie/portal/eng/health/az/D/Dyspraxia-children-/Deaf:https://hse.ie/portal/eng/health/az/D/Deafnesswww.chime.ieDeafBlind:https://hse.ie/portal/eng/health/az/D/Deafblindness/EFoetal Alcohol:https://www.fasd.ie/Fragile X:https://fragilexireland.org/https://www.fragilex.org.uk/Friedreich’s Ataxia:https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Friedreichs-Ataxia-Fact-SheetGlobal Developmental Delay:https://www.cafamily.org.uk/medical-information/conditions/g/global-developmental-delay/Hearing Impairment:https://hse.ie/portal/eng/health/az/H/Hearing-impairment/Hydrocephalus:https://hse.ie/portal/eng/health/az/H/Hydrocephalus/Intellectual Disability:https://www.sess.ie/categories/general-learning-disabilitieshttps://www.intellectualdisability.info/JKLearning Disability (Mild / Moderate / Severe Profound):https://www.sess.ie/categories/general-learning-disabilitieshttps://www.understood.org/enMuscular Dystrophy:https://www.mdi.ie/https://www.nhs.uk/conditions/muscular-dystrophy/Pages/Introduction.aspxMicrocephaly:https://www.cdc.gov/ncbddd/birthdefects/microcephaly.htmlhttps://microcephaly.co.uk/index.htmlNOPrader Willi Syndrome:https://pwsai.ie/https://www.pwsausa.org/QRett Syndrome:https://rettsyndrome.ie/https://www.rettsyndrome.org/Spina Bifida:https://hse.ie/portal/eng/health/az/S/Spina-bifida/https://www.sbhi.ie/Syndromes:https://www.genome.gov/10001204Speech

Disability Services in Your County:

https://www.hse.ie/eng/services/list/4/disability/disabilityservicescounty.html Click on your county to learn what disability services are available: Carlow/Kilkenny | Cavan/Monaghan | Clare | Cork North | Cork North Lee | Cork South Lee | Cork WestDonegal | Dublin North | Dublin North Central | Dublin North West | Dublin South City | Dublin South East | Dublin South West | Dublin West | Dun Laoghaire |Galway |Kerry | Kildare/West Wicklow | Kilkenny/Carlow|Laois/Offaly | Leitrim/Sligo | Limerick | Limerick East/Tipperary North | Longford/Westmeath | Louth |Mayo | Meath | Monaghan/Cavan |Offaly/Laois|Roscommon|Sligo/Leitrim |Tipperary North/Limerick East | Tipperary South |Waterford | Wexford | Wicklow | West Wicklow/Kildare | Westmeath/Longford