In 1968 a small group of parents whose children had spina bifida and/or hydrocephalus established a voluntary organisation which would highlight awareness of these two conditions and support families, individuals and carers who were affected.
Our purpose
Our purpose is to be a powerful community, united by spina bifida and hydrocephalus, and moving together towards fulfilled futures.
These parents were pioneers who laid the foundations for what is now a nationally recognised organisation. Their optimistic spirit encouraged them to affect real change for people who had the conditions, their families and carers. Find out more>>
Our goal
We aim to foster an environment in which every person affected by spina bifida and hydrocephalus can lead a fulfilled life.
Our action
We provide essential information, support and advice to everyone living with spina bifida and/or hydrocephalus.
We believe in, and seek to realise, a socially inclusive and equal society for all people living with spina bifida and/or hydrocephalus.
We enable our members to get the very best from health, education, and social services.
We lobby the Government to significantly improve services and all necessary access for people living with spina bifida and hydrocephalus.
