Rare Diseases Ireland (formerly GRDO – the Genetic and Rare Disorders Organisation) is a non-governmental organisation with the mission to act as a national alliance for voluntary groups representing the views and concerns of people affected by or at risk of developing genetic or other rare diseases.
This will be achieved by RDI focusing its efforts as follows:
1. Voice and promote views of the member organisations on issues of common concern.
2. Be a strong and united voice that will increase public awareness of genetic and other rare diseases.
3. Promote further development of genetic services in Ireland.
4. Advocate for the availability of adequate care services in Ireland for people living with genetic and rare diseases.
5. Facilitate the exchange of information between member organisations that represent people living with genetic and rare diseases.
6. Establish a liaison with geneticists and other relevant specialists nationally and internationally to help Rare Diseases Ireland achieve its aims and objectives.
7. Collaborate with national and international stakeholders on policy and regulation issues in the area of genetic and rare diseases.
