May 16, 2019
Thinking Disabilities, Hill Road, Killaloe, Co. Clare, V94 YR59, Ireland.
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Thinking Useful Links/Organisations:
Heart Children Ireland:
https://heartchildren.ie/ https://heartchildren.ie/ We are a nationwide organisation with over 1,000 member families. We were founded in 1990 and are a registered charity. We are a completely voluntary group and currently receive no government funding. We depend on our own fundraising and donations from individuals and businesses. In the first 25 years of our existence,
May 16, 2019
Angelman Syndrome Ireland:
https://www.angelman.ie/ What is Angelman Syndrome? Angelman Syndrome is a genetic disorder of chromosome 15 characterised by severe intellectual disability, lack of speech, sleep disturbance, and yet, usually a happy demeanour. Affecting 1 in every 20,000-25,000 people and based on our population there are currently approximately 350 people living with AS
May 15, 2019
HSE: Useful Links
https://www.hse.ie/eng/services/list/4/disability/progressing-disability/links/ Please note websites which are not Irish may contain information on services which may not be relevant in this country ASD / Autism:https://hse.ie/portal/eng/health/az/A/Autistic-spectrum-disorder/www.aspireireland.iewww.autismireland.iewww.autismspectrum.org.auwww.autism.org.ukwww.middletownautism.comwww.asiam.ieADD/ADHD:https://hse.ie/portal/eng/health/az/A/Attention-deficit-hyperactivity-disorder-ADHD-/www.hadd.iewww.incadds.ieAngelman Syndrome:www.angelman.iehttps://ghr.nlm.nih.gov/condition/angelman-syndromeBrain Injury:www.abiireland.iewww.headway.ieCerebral Palsy:https://www.scope.org.uk/Chromosomal:www.rarechromo.orghttps://www.grdo.ie/Cleft Palate:https://www.cleft.ie/https://www.hse.ie/eng/health/az/C/Cleft-lip-and-palate/Down’s Syndrome:https://hse.ie/portal/eng/health/az/D/Down’s-syndrome/https://www.downsyndrome.ie/DCD / Dyspraxia:https://hse.ie/portal/eng/health/az/D/Dyspraxia-children-/Deaf:https://hse.ie/portal/eng/health/az/D/Deafnesswww.chime.ieDeafBlind:https://hse.ie/portal/eng/health/az/D/Deafblindness/EFoetal Alcohol:https://www.fasd.ie/Fragile X:https://fragilexireland.org/https://www.fragilex.org.uk/Friedreich’s Ataxia:https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Friedreichs-Ataxia-Fact-SheetGlobal Developmental Delay:https://www.cafamily.org.uk/medical-information/conditions/g/global-developmental-delay/Hearing Impairment:https://hse.ie/portal/eng/health/az/H/Hearing-impairment/Hydrocephalus:https://hse.ie/portal/eng/health/az/H/Hydrocephalus/Intellectual Disability:https://www.sess.ie/categories/general-learning-disabilitieshttps://www.intellectualdisability.info/JKLearning Disability (Mild / Moderate / Severe Profound):https://www.sess.ie/categories/general-learning-disabilitieshttps://www.understood.org/enMuscular Dystrophy:https://www.mdi.ie/https://www.nhs.uk/conditions/muscular-dystrophy/Pages/Introduction.aspxMicrocephaly:https://www.cdc.gov/ncbddd/birthdefects/microcephaly.htmlhttps://microcephaly.co.uk/index.htmlNOPrader Willi Syndrome:https://pwsai.ie/https://www.pwsausa.org/QRett Syndrome:https://rettsyndrome.ie/https://www.rettsyndrome.org/Spina Bifida:https://hse.ie/portal/eng/health/az/S/Spina-bifida/https://www.sbhi.ie/Syndromes:https://www.genome.gov/10001204Speech
May 15, 2019
Disability Services in Your County:
https://www.hse.ie/eng/services/list/4/disability/disabilityservicescounty.html Click on your county to learn what disability services are available: Carlow/Kilkenny | Cavan/Monaghan | Clare | Cork North | Cork North Lee | Cork South Lee | Cork WestDonegal | Dublin North | Dublin North Central | Dublin North West | Dublin South City | Dublin South East | Dublin South West | Dublin West | Dun Laoghaire |Galway |Kerry | Kildare/West Wicklow | Kilkenny/Carlow|Laois/Offaly | Leitrim/Sligo | Limerick | Limerick East/Tipperary North | Longford/Westmeath | Louth |Mayo | Meath | Monaghan/Cavan |Offaly/Laois|Roscommon|Sligo/Leitrim |Tipperary North/Limerick East | Tipperary South |Waterford | Wexford | Wicklow | West Wicklow/Kildare | Westmeath/Longford
May 15, 2019
Epilepsy Ireland:
https://www.epilepsy.ie/ Epilepsy Ireland was established in 1966 with the goal of improving the quality of life of people with epilepsy in Ireland. Today, we provide a range of services from headquarters in Dublin and our regional offices in Cork, Dundalk, Galway,Kerry, Kilkenny, Letterkenny, Limerick, Sligo and Tullamore. Vision Epilepsy Ireland’s vision is to achieve a society where no person’s life is limited by
May 9, 2019
Dystonia Ireland:
https://www.dystonia.ie/ https://www.dystonia.ie/ The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national
May 9, 2019
Walk.ie
https://www.walk.ie Our Mission: We are leaders in a movement for change, empowering people with disabilities to live self-determined lives in an equal and inclusive society. Employment: At WALK we believe that everyone who wants to work, have a job and a career can do so, given the right supports. Our role is to facilitate
May 9, 2019
Dόchas: (Hope for People with Autism)
https://www.limerick.ie/discover/living/community-services/equality-diversity/dochas-hope-people-autism Provides support to parents and children with autism. Dóchas Midwest Autism Support is a registered charity (Charity No 13037) and provides information and support to children and adults with Autism and their parents and wider family members in the Mid-West region. We provide weekly social interaction clubs for children
May 8, 2019
Cork Association For Autism:
https://corkautism.ie/ The story of the Cork Association for Autism (CAA) begins back in the late 70’s when a group of families in the Cork region were left frustrated at the lack of information, knowledge and fundamental support services available to those affected by Autism Spectrum Disorder. These pioneering founding families came together in determination
May 8, 2019