National Groups

Neurology

Neurology is the branch of medicine dealing with disorders of the nervous system, including the brain, brain stem, spinal cord, root, plexus, peripheral nerves and muscle. The total cost of disorders of the brain and mind was estimated at €798 billion in Europe in 2010. This estimate is likely to

Epilepsy

Epilepsy is a chronic disease characterized by unpredictable, sometimes lifelong, often dangerous, seizures. The condition affects about one in every 100 people and is second only to stroke as the commonest chronic neurological disorder in Europe. Of the 40,000 sufferers in Ireland only about 70% are well controlled on medication,

ADHD in Adults

The assessment and treatment of Attention Deficit Hyperactivity Disorder (ADHD) in adults was prioritised by the Health Service Executive (HSE) Mental Health and Clinical Design and Innovation, in conjunction with the College of Psychiatrists of Ireland (COPI), for development as a Clinical Programme because of the absence of such services

Palliative Care:

The programme was established in 2010 as a joint initiative of the HSE Clinical Design and Innovation and the Royal College of Physicians. The programme aims to ensure that persons with life-limiting conditions and their families can easily access a level of palliative care service that is appropriate to their

One Family Ireland:

Our Vision   One Family believes in an Ireland where every family is cherished equally, and is enabled to enjoy the social, financial and legal equality to create their own positive futures.   Our Mission   One Family is working to ensure a positive and equal future for people parenting

Prader Will Association Ireland:

Our Objectives To provide support for persons with PWS, their families, and their carers by providing a range of services such as: promoting awareness of the syndrome; providing information services including seminars and conferences; and by promoting best practice standards of care for persons with PWS To facilitate the development

Fragile X Ireland:

The objectives of IFXS are to: Promote public awareness of Fragile X Syndrome, the cognitive and behavioural difficulties associated with the syndrome, the likely impact on individuals and their families, and good practice in meeting their special needs. Provide support for families caring for individuals with Fragile X. Provide an

Foetal Alcohol Syndrome:

FASD Ireland was set up by a group of carers in Ireland who have had contact with children with Fetal Alcohol Spectrum Disorders (FAS,pFAS,ARND,ARBD). The association is dedicated to: Raising awareness about FASD (FAS,pFAS,ARND,ARBD). Helping to reduce the incidence of birth defects and neurological damage caused by prenatal exposure to

Share the Journey:

The origins of Sharing the Journey can be traced to March 2010 when its founding members, Theresa Eccles, Teresa McDonnell and Janet Rose, attended a conference on the future of Deaf Education in Ireland at Croke Park. All three women are mothers of d/Deaf sons. At the conference, they discussed

Neurofibromatosis Association of Ireland:

The Neurofibromatosis Association of Ireland (NF Ireland) was founded in 1985. NF Ireland provide a comprehensive range of services including a 24-hour Helpline, literature on the condition, genetic counselling service and information but its primary aim is to inform sufferers and their families of the disorder, supporting them and letting