National Groups

Tick Talk Ireland:

Tick Talk Ireland is composed of a small group of passionate volunteers wanting to provide accurate information about the prevention, diagnosis and treatment of Lyme Disease. Tick Talk Ireland originally was set up January 2009 by two sufferers, Jenny O’Dea and Janet Fitzgerald. Alarmed by the lack of knowledge and

The Irish ME/CFS Association:

The Irish ME/CFS Association, through our various activities and awareness campaigns, strives to improve the situation for people with ME/CFS and to give them information to empower themselves. The group, which has been run by volunteers for over two decades, has approximately 300 members, from the estimated 10,000-19,000 people with

DESSA – Disability Equality Specialist Support Agency:

ESSA is about promoting disability rights in Ireland. The purpose of DESSA is to create a society where everyone with lived experience of disability and their families can participate equally as full citizens. We do this by to eliminating barriers to enable disabled people to reach their potential and participate

The Bluestack Special Needs Foundation:

The Bluestack Special Needs Foundation was established to provide direct supports to people themselves and direct supports to their families and carers. ​ We raise the majority of funds through the local community and a range of fundraising activities. We are heavily reliant on the generous donations of the local community and indeed

Aphasia Ireland:

Aphasia Ireland is a registered charity, formed with the sole aim of creating awareness and support for sufferers and those around them. With your help, we wish to empower people with Aphasia to overcome the challenges and barriers that stand in the way of a normal happy life. To also

St. Hilda’s Services:

St. Hilda’s Services is a voluntary organisation that provides a comprehensive quality service to people with mild, moderate and severe intellectual disabilities. Based in Athlone our services benefit in excess of 120 services users and their families. St. Hilda’s Services unique governing structure which is predominantly parents and families of

Reach Ireland:

REACH is the leading charity providing support and information to parents and their children affected by upper limb  difference.  It is a friendly, caring place offering fun activities to encourage Reach children to aim higher. By joining or supporting Reach you are helping the valuable work we undertake. We have 19

Rare Diseases Ireland:

Rare Diseases Ireland (formerly GRDO – the Genetic and Rare Disorders Organisation) is a non-governmental organisation with the mission to act as a national alliance for voluntary groups representing the views and concerns of people affected by or at risk of developing genetic or other rare diseases. This will be

Positive Futures:

At Positive Futures, our aim is to transform the lives of people with an intellectual disability, acquired brain injury or autistic spectrum condition. We do that by enabling people to realise their hopes, dreams and ambitions. We change attitudes by proving that a person doesn’t have to be defined by

Polio Survivors Ireland:

Polio Survivors Ireland works to maintain the independence and dignity of polio survivors, supporting them at work, in the home and otherwise. Our Core Objectives are to create awareness and provide information on the needs of polio survivors and on Post Polio Syndrome and to support and advocate on behalf of all polio